Think beneath the surface: how one Gloucestershire campaigner is changing perceptions of disability
For Invisible Disabilities Week, we’re sharing the story of Gloucestershire campaigner Sam, whose personal experiences inspired him to challenge perceptions of disability and create a more inclusive symbol of accessibility.
What started as an idea has grown into a movement supported by more than 1,000 businesses and organisations across Gloucestershire and beyond. Through a new disability symbol that reflects a wider range of experiences, Sam is encouraging people to look beyond what they can see and rethink their assumptions about disability.
Turning personal experience into positive change
The campaign was inspired by Sam’s own experiences of living with DiGeorge Syndrome and the long-term effects of a childhood brain tumour and cancer treatment.
When Sam was younger, his disability was less visible to others, but the barriers he encountered were very real:
“We were constantly questioned about why I needed a disabled badge and disabled parking space. Once we explained, we’d often get the response: ‘You’re not disabled enough’.“
As the effects of his condition became more visible over time, particularly when he began using a wheelchair, these challenges became less common. This shift in how others reacted revealed something important: perceptions of disability were often shaped by what people could see, highlighting a wider lack of awareness and understanding of non-visible disabilities.
“I don’t get asked why I need a disabled space anymore. People presume that you need to be in a wheelchair to be disabled, which is not true.“
These experiences motivated Sam to take action, determined to change how disability is represented and understood.
From an idea to a growing movement
First introduced in 1969, the familiar blue wheelchair symbol is recognised around the world as the symbol of accessibility. But Sam wanted to create something that better reflected the diversity of disabled people’s experiences.
Since August 2022, Sam has worked to raise awareness of non-visible disabilities. While studying at National Star College, he independently approached Sky News to share his vision for better representation.
Then in October 2022, Sam presented his idea to the Natspec Student Voice Parliament, launching a competition for students at specialist colleges to design a more inclusive disability symbol. In May 2023, he helped select the winning design, created by a student at St John’s College in Brighton. Featuring two standing figures alongside a wheelchair user, the symbol’s message is simple but powerful:
“Some disabilities are visible. Some are not. Take care of each other.”
With support from National Star, local businesses and organisations, Sam helped bring the campaign to the high street, launching it in Cheltenham in September 2023. From festival signage to displays in more than 1,000 venues, each badge or sign offers an opportunity to challenge assumptions, encourage understanding and make inclusion part of everyday conversations.
Looking beyond what we can see
During Invisible Disabilities Week, Sam wants to build on this momentum by raising awareness of the experiences of people whose disabilities or conditions may not be immediately obvious.
“Just because you can’t see that people are struggling, it doesn’t mean they aren’t. These conditions can vary over time, so one day someone may seem fine, while the next day they may be finding things much harder.“
For Sam, greater understanding starts with challenging assumptions, listening to people’s experiences and recognising that not all barriers are visible. His campaign encourages everyone to play a part, whether by displaying the campaign badge, starting a conversation or approaching others with greater openness.
He also hopes his experience will inspire others to turn their own ideas into positive action:
“The best thing to do is talk to people who are passionate about the same issue, whether that’s charities, community groups or people online. Don’t be afraid to get your name out there.“
Sam’s journey shows how one person’s determination, combined with the support of others, can help bring about meaningful change.
A vision for a more inclusive future
Sam’s ambitions for Think Beneath the Surface continue to grow. Having helped establish the campaign across Gloucestershire, he now hopes to see its message reach a national and international audience.
Earlier this year, Sam met with officials from the Department for Transport, including the Head of Blue Badge Policy, to discuss his campaign and its potential to influence national policy.
“My aim is to get it out there nationally. And in the future, I’d love to go to the United Nations and make it the internationally recognised disabled sign.“
What began with Sam questioning how disability is represented has grown into a campaign challenging others to do the same. And while his ambitions are now reaching beyond Gloucestershire, the message at its heart remains simple: disability isn’t always visible, and everyone deserves to be recognised, respected and included.
Be part of the change
Would your business or organisation like to display the Think Beneath the Surface badge, or find out more about the campaign? Please email thinkbeneaththesurface@outlook.com
To learn more about how to be an ally to disabled people during Invisible Disabilities Week, visit Scope’s webpage: Invisible disabilities | Disability charity Scope UK